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Welcome To My World

wheelchair

The Process of Getting a New Wheelchair

Because I have Osteogenesis Imperfecta, or Brittle Bone Disease, it's extremely important that I use a wheelchair that is not only stable but supports my crooked body in all the right places so that I don't break a bone if I hit a bump. My body is not standard. I have bends in all the wrong places, so my seating system has to be completely custom to be comfortable and effective. I have to be physically able to reach the controls and push all the buttons. It's important that every detail of my chair is tailored to my need[...]
at a concert in a wheelchair

Concert Fun

Anyone who knows me knows that my idea of the perfect night involves being in the front row of a concert. I don't have a lot of hobbies besides painting (which usually feels more like work these days), but I absolutely LOVE listening to live music and attending my favorite artists' shows. Thanks to one of my aides and my aunt, I was introduced to country music at a very young age (much to my mother's dismay), and absolutely fell in love with it. That's not to say I don't like other types of music too, but I am definitely a c[...]
Lexie, Katherine's Service Dog

Meet Lexie, My Service Dog

Meet Lexie, my 7-ish year old sheltie/border collie mix and trained service dog. We rescued Lexie about five years ago from the Gulf Coast Sheltie Rescue in Pensacola. She had been found five months prior running on the interstate with a child's leash attached to her, had heartworms, and knew absolutely NO manners or obedience. Though we did not want a puppy, we basically got one in adult form. She barely even knew her name. Originally, I wanted to get Lexie into competitive dog agility. It turned out that Lexie was p[...]
on the beach

Why I Hate the Beach

Posted In: Welcome To My World
What is the first place you think of when you think of taking a summer vacation? I bet more than half of you instantly thought, THE BEACH of course! There's something about that beautiful blue water, the ocean waves, white sand, and sun that just lures people in. Kids love to run in the surf, build sandcastles and maybe throw a ball around while their parents love the relaxing sound of the ocean, a shady canopy, and maybe an adult beverage or two. Even the dog loves to play in the sand and the surf. There is something for ev[...]
depending on others

Depending on Others is Hard!

Posted In: Welcome To My World
Do you suddenly find yourself depending on others for basic necessities? It's hard, isn't it? When people meet me, they often say things like, "Wow, you break that easily? You're in pain all the time? That must be so hard. I can't even imagine that." The truth is, yes, there are days where it can be difficult just to breathe and the pain factor really sucks, but most of the time I have an underlying pain that I've adapted to over the years. Sometimes physical pain makes it hard to be me, but doesn't everyone have somet[...]
wheelchair

Lessons in Wheelchair Etiquette

First and foremost, don't assume someone in a wheelchair has a mental disability. Like me, there are many, MANY people in wheelchairs who are completely aware of what is going on around them and chances are they understand exactly what you are saying about them even if they are physically unable to respond.  Most people in wheelchairs are not deaf. I don't know why, but a lot of strangers have this innate need to speak loudly and slowly to me when they first meet me. It's true that I do have a little hearing loss, bu[...]
jane hash, osteogenesis imperfecta

“Hashing It Out” with Jane Hash: An Activist With Osteogenesis Imperfecta

Today on Looking Up, I'd like to introduce you to a TRUE entrepreneur, Jane Hash, who just so happens to have Osteogenesis Imperfecta Type III like me. An activist, business owner, volunteer, podcaster, nutritionist, and blogger herself, Jane has truly done it all. Let's get started! Hey Jane! First, I want to start off with what exactly you DO...or maybe what you DON'T DO would be the shorter list! When someone asks you what you "do," how do you answer them? Thank you for asking that question because it’s someth[...]
Katherine's early art

Why I Got Into Art

When I was little (in the younger sense as I am still little in the physical sense), I drove my parents absolutely bonkers. Because I didn't have to learn to crawl or walk, I learned to talk very quickly, and was speaking in full sentences at ten months old. Ordering people around came as a natural skill, and I was bored all the time. That got a bit better when my mother insisted that my doctor help us get my first motorized wheelchair when I was two, but when I didn't have something to keep me occupied, I got cranky. Eve[...]
tyler hubbard and florida georgia line

Don’t Pet Me!

Here's your laugh for the day. About a year ago, I caught a really nasty cold. When I get sick, I tend to break ribs and collarbones from coughing hard or sneezing repeatedly. Right as I was getting sick, my friend and I went to a Florida Georgia Line concert here in New Orleans. Now, yes, maybe I shouldn't have gone since I was already starting to not feel well, but if you've ever been to one of their shows, you understand why it was worth it! Florida Georgia Line, Thomas Rhett and Frankie Ballard put on one heck of a show[...]
dumb people

15 Dumb Things Strangers Have Said to Me:

Posted In: Welcome To My World
"Mommy, it talks!" (six year old after I politely told her hi when I caught her staring at me) "How did you get that way?" (Uhh... Depends on what you believe?) "Does it hurt to break a bone?" (What do you think? How about I run over your toes with this 400 lb wheelchair and we'll see how you feel.) "It's eating chicken wings all by itself!" (Exclaimed by an old lady to an entire food court in a mall.) "What a cute baby!" (Dude, I'm pretty sure I could teach you curse words you never knew existed. Can your[...]