You Gotta Use What You Got, Kid

Some of the best advice I’ve ever received is “You gotta use what you got, kid.”  When you have a disability and your job requires you to effectively market yourself, it’s tricky to find the balance of just how much it should play a role in your marketing strategy. While it’s true that I have physical challenges that cause me a decent amount of p[...]

Live Your Life. Show Up.

One of the most common questions I get asked is “How do you manage to have such a positive attitude when your life is so hard and full of so much physical pain?”  Well, there’s a few reasons. The first is that I was raised not to feel sorry for myself. My mother in particular just wouldn’t allow it, which as a child was frustrating, but now I cou[...]

Saving the Mountain Gorillas with Ellen Degeneres

As some of you know, I’m a huge Ellen Degeneres fan. Not only are we both from the same city, but we are both avid animal lovers. It is literally one of my ultimate life goals to meet her one day and work with her on a project or two. Ellen has the reputation as being one of the kindest celebrities out there, and she does a ton of work with animal rescue a[...]

The Rodding Process

One of the most common therapies for people with Osteogenesis Imperfecta is rodding, or surgical procedures where metal rods are inserted inside the long bones for strength. One of the major issues people with OI have is that their long bones (arms and legs) develop abnormally and are often bowed. When they don’t grow straight, they are weaker and usually[...]

KAK ART Parties and 2018 Wrap-Up

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As many of you know, one of the ways I share my art and jewelry is through intimate at-home parties. KAK ART Parties were born in my grandparents’ house in New Iberia about ten years ago with a group of their closest friends. My first party in New Iberia was so well received that it became an annual occurrence. Once it grew to over 80 guests, I moved i[...]

Bucket List/Goals

As this year comes to a close (yes, it's already November), I realize that it's time to update my bucket list/life goals. I've been lucky enough to check several items off in the last couple years, and there are new ones to add. I figure since my 30th birthday is fast approaching, now is the perfect time to dream big and set a few goals.  Without further a[...]

Clothing for EVERYONE: Classy Little Fashions

Any of you Facebookers know that there is a Facebook group for everything, and Osteogensis Imperfecta is no different. There are several out there, some for the different types, some with a focus on fitness, some with age restrictions, etc. I belong to several, and sometimes it's nice to talk to people who go through the same social and chronic pain issues t[...]

My Relationship With My Wheelchair

When people find out I use a wheelchair for mobility, the conversation following usually starts either one of two ways:  Person #1: Oh, I'm so sorry you are confined to a wheelchair. It must be so hard not being able to walk. I can't even imagine. You poor thing."  OR Person #2: "You are so lucky that you don't have to walk! Where can I get[...]

CranioSacral Therapy

Most people with Osteogenesis Imperfecta take part in some type of regular physical therapy and/or exercise program. You may think that because we break bones easily we would not be able to do that, but in reality, PT helps our bodies keep moving. Certainly we have to be careful, but anything we can do to allow our bodies to move in a more normal way, like s[...]

Sugarlanding

“Some believe in destiny and some believe in fate, but I believe that happiness is something we create.” -Something More, Sugarland In 2009, I talked my aunt into braving the heat and the crowds to see an up and coming band called Sugarland at Jazz Fest. The duo had a few songs out on the radio, and I thought they were pretty good. Little did I know exa[...]