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barometric pressure

Barometric Pressures of Fall

It's a beautiful day here in New Orleans. 75 degrees, full sun and a nice breeze coming off the lake. Fall is quickly approaching, and it's a nice change from our 97 degree, 100% humidity summer weather. (Not to mention the cold front is keeping the hurricanes away!) Our dogs have an extra spring in their step and my Facebook feed is blowing up with people e[...]
flying with a wheelchair

The Challenges of Flying with a 400 Pound Wheelchair

My blog this week was supposed to tell you guys about the amazing art teachers I've had throughout my career, but the experiences I had with my wheelchair over the weekend flying to Maine and back inspired me to switch it up a bit. Don't worry, art teachers are soon to come. A couple of months ago, Mom and I were given a unique opportunity to plan a trip t[...]
lying down to paint

How I Paint: Perspective, Habit, & Practice

This may surprise you, but I paint lying on my right side, stabilizing my left hand on my body. This is actually the position in which I do most daily activities. Because it's hard on my back and my joints to sit up for a long time,even in my wheelchair, I've adapted to doing most things from a more comfortable lying down position. When you have constant p[...]

KAK ART Handmade Jewelry Designs

Posted In: All | Featured | KAK Art & Designs
I started making handmade jewelry when I was about fourteen. My dad had just had his double lung transplant, and in a weird series of events, reconnected with an old veterinary client of his who was into all kinds of art, including jewelry making. Ellan Vavrick is extremely talented in a number of mediums, including but not limited to painting, sculpture, st[...]
being sick osteogenesis imperfect

Being Sick and Having Osteogenesis Imperfecta

It's summertime, and you know what that means-everyone seems to be sick with that miserable upper respiratory cold that goes around without fail at this time every year. You know, the one you have tried desperately not to catch? The one where you tell yourself it's just a sore throat, and then before you know it, you're pretty sure you're dying from drow[...]
child abuse

“Looking Up” Excerpt: Caged? Child Abuse?

Parents of children with Osteogenesis Imperfecta are often charged with child abuse, simply because their kids always turn up with broken bones. My muscles can break my bones when they contract, making it seem like my bones break at random. You can see where, especially if a child has a lower severity of OI, parents are blamed when the child shows up hurt a[...]
wheelchair control

10 Useful Gadgets Brought to You by People With Osteogenesis Imperfecta

Having Osteogenesis Imperfecta, or Brittle Bone Disease, certainly poses some unique problems for those of us with short limbs and limited mobility. Here are ten gadgets/adaptive technological advances that help actual people with OI as well as other disabilities. 1. Wheelchairs: This one is pretty obvious, but most of us with the more severe forms of O[...]
wheelchair

The Process of Getting a New Wheelchair

Because I have Osteogenesis Imperfecta, or Brittle Bone Disease, it's extremely important that I use a wheelchair that is not only stable but supports my crooked body in all the right places so that I don't break a bone if I hit a bump. My body is not standard. I have bends in all the wrong places, so my seating system has to be completely custom to be co[...]
at a concert in a wheelchair

Concert Fun

Anyone who knows me knows that my idea of the perfect night involves being in the front row of a concert. I don't have a lot of hobbies besides painting (which usually feels more like work these days), but I absolutely LOVE listening to live music and attending my favorite artists' shows. Thanks to one of my aides and my aunt, I was introduced to country mus[...]