As most of you know, I spend a lot of my time lying down. It’s easier for me to function in that position because my back and neck get tired quickly in my chair, and when I’m lying on my side I feel like I’m not having to fight gravity as much. It can be hard for me to lift my arms to do things sitting up, but lying on my side I can use my body to support them while I eat, paint, and type. (And no, I don’t choke while eating on my side. Read more about that here.) You would think that having brittle bones would ma[...]
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OI
Parents of children with Osteogenesis Imperfecta are often charged with child abuse, simply because their kids always turn up with broken bones. My muscles can break my bones when they contract, making it seem like my bones break at random. You can see where, especially if a child has a lower severity of OI, parents are blamed when the child shows up hurt at school and can’t say how they hurt themselves. Well, my parents have also been charged with child abuse, though for a slightly different reason… My parents ar[...]
Osteogenesis Imperfecta affects approximately one out of 15,000 people. In a nutshell, it's a genetic bone disorder that causes bones to break easily and grow abnormally due to a lack of collagen (the stuff that helps make up your bones, organs, hair, and fingernails). It also causes weak ligaments, hearing loss, breathing problems, and dental issues. The whites of OI people's eyes tend to have a blue tint, and they usually have a fairly triangularly shaped face and a "pigeon breasted" chest (meaning that the sternum sticks[...]